Our Awarded Grants and Partners
We measure our impact through ongoing partnership with the organizations we support. Our grantees are accessed by their progress, impact, and outcomes.
Patient-Focused Drug Development Initiative
The Fairfield Fund partnered with the Foundation Fighting Blindness to fund a Patient-Focused Drug Development (PFDD) program with the U.S. Food & Drug Administration. PFDD programs elevate the voices of patients and caregivers, ensuring that lived experience helps shape how new treatments are evaluated and developed—so regulatory decisions reflect real-world priorities, not just clinical measures.
Accountable to our patient community.
We measure our impact through ongoing partnership and accountability with the organizations we support. Grantee partners are asked to provide biannual written updates describing progress, outcomes, and challenges related to their funded projects. These reports help us assess alignment with our mission, understand real-world impact, and inform future funding decisions, while allowing flexibility for the evolving nature of research and patient-focused work.
“With the support of The Fairfield Fund, people living with Usher syndrome type 1B now have a seat at the table with the FDA to share their real-world experiences—an essential step in advancing potential treatments from the lab into the lives of patients. We are deeply grateful for this partnership and for The Fairfield Fund’s belief in the power of the patient voice.”
Angela Bowman
PhD, Director of Scientific Research,
Foundation Fighting Blindness
Partner Organizations
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Fighting Blindness Foundation
Funds and advances research to prevent, treat, and cure blinding retinal diseases, including retinitis pigmentosa, Usher syndrome, Stargardt disease, and macular degeneration, supporting scientific discovery from early research through clinical trials.
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Center For Hearing & Communication
Delivers comprehensive clinical and educational services for people affected by hearing loss and deafness, providing therapy, technology guidance, and community programs that strengthen communication access across the lifespan.
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Save Sight Now
A parent-led nonprofit dedicated to accelerating translational research for Usher syndrome type 1B, directly funding gene-specific studies and partnerships that move promising therapies closer to clinical application.
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Usher Syndrome Coalition
The Usher Syndrome Coalition supports every individual and family worldwide, regardless of subtype or communication method. Through the USH Trust and the RARE-X–powered Usher Syndrome Data Collection Program, they connect the global community and accelerate research toward treatments.on goes here
