April 22, 2026
Montclair, NJ

Our official launch of The Fairfield Fund, bringing together close friends and family to learn more about Usher Syndrome and the work underway to change its future.

The evening will feature light food and drinks, conversation with our community, and a short talk on the science, progress, and hope emerging in the fight against Usher Syndrome.

Interested in attending? Contact us for more information.

April 30, 2026
Denver, CO

The Denver Dinner brings together friends and supporters for an evening of meaningful conversation, connection, and shared learning around rare disease and the urgent need for treatments for Usher Syndrome 1B.

All proceeds will fund a grant to Save Sight Now, with every donation matched to maximize impact.

Interested in attending? Contact us for more information.

May 3-7, 2026
Denver, CO

The Association for Research in Vision and Ophthalmology (ARVO) is the world’s leading gathering of vision scientists, clinicians, and industry leaders working to advance treatments for blindness and visual disorders.

ARVO brings together global experts to share breakthroughs, explore emerging therapies, and accelerate progress toward sight-saving treatments — making it a critical forum for advancing research that impacts the Usher Syndrome community.

June 12-13, 2026
Fort Worth, TX

VISIONS 2026: United in Vision is the Foundation Fighting Blindness’ global conference that brings together patients, researchers, and industry leaders to share advances in retinal disease research, treatments, and community support.

July 17-19, 2026
Bloomington, MN

The Usher Syndrome Coalition's USH Connections Conference brings together leading USH researchers while connecting with hundreds of individuals and families living with Usher syndrome and professionals serving the deafblind community.