Your Gift Has Real Impact
Every dollar donated is matched, so double your dollars and donate today!
Only 5% of rare diseases have an approved FDA treatment, and support services for patients and families remain critically underfunded. Your donation helps advance breakthrough research and deliver practical tools that improve lives today.
Why give?
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Fuel progress
Because rare diseases are underfunded, supporting organizations like ours is one of the most direct ways donors can accelerate meaningful progress for patients and families.
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Double the dollars
Every dollar donated is matched one for one by our founding family. Whenever you give, whatever you give, will have double the impact.
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Create opportunity
Our work provides tools and resources for life. You’re not just funding treatment — you’re creating opportunities for children to grow, thrive, and become anything they choose.
Frequently Asked Questions
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Yes, The Fairfield Fund is a registered 501(C)(3).
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Your donations fund research, treatment development, mental health, communication access, and independence tools that improve life for people living with Usher Syndrome 1B.
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Yes, please reach out via our contact page and we can discuss volunteer opportunities.
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Yes, please use our donation form to make a donation in honor of or in memory of. If you have something more specific, please reach out directly to us through our contat