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Living with Usher syndrome is challenging — but people with Usher Syndrome rise to that challenge every day. Access to the right tools and treatments matters. From communication support and mental health resources to the latest medicine and te
The vestibular system helps control balance and spatial orientation. In Usher Syndrome Type 1, vestibular dysfunction is common. This can affect: • Walking milestones • Athletic coordination • Balance in low light With therapy and sup
Usher Syndrome Type 1B (USH1B) is caused by mutations in the MYO7A gene. It is characterized by: • Congenital sensorineural hearing loss • Vestibular dysfunction • Early-onset Retinitis Pigmentosa USH1B is rare — and scientific