Accelerating Treatments. Supporting Lives.
The Fairfield Fund advances research and real world tools for people living with Usher Syndrome, the leading genetic cause of deafblindness.
Advancing What’s Possible
Usher Syndrome doesn’t define those living with this rare disease - their resilience does. We invest in both scientific progress and practical resources so people with Usher Syndrome can live fully, confidently, and on their own terms.
A diagnosis of Usher Syndrome impacts the entire family. The Shepard and Feller families share their story of what it’s like for parents to receive this diagnosis for their children, and the path forward out of darkness.
Gene-Specific.
Community-Wide
The Fairfield Fund focuses on Usher Syndrome 1B, as gene-specific research is essential to advancing effective treatments for Usher Syndrome subtypes. While we prioritize targeted genetic research, we also invest in gene agnostic therapies and technologies that benefit all subtypes and the broader deafblind community.
All In for 1B
We are committed to doing everything we can to improve the lives of patients living with Usher Syndrome 1B. We have an ongoing matching program, where every dollar donated is doubled, and every dollar raised goes directly to grants.
Learn more about our funding philosophy and grant opportunities.
Make an Impact
Every act of generosity—big or small—helps improve the life of a child or adult living with Usher Syndrome. Thank you for your support.
